TODAY! Okay, hopefully I can write about today. Haha!!!
This morning: Lexi woke up fairly early (7am) and I was hoping she'd sleep more! Bummer. The oxy dose is less, but we are doing more Tylenol and Motrin. She wasn't feeling good this morning and threw up all over her bed, poor girl. On the positive side, it made it so I had to hold her for the first time since SUNDAY! We got her cleaned up and gave her a bath using the hospital bath wipes and their no-rinse shampoo. We even brushed her teeth. ;-) After that, she just wanted to be held, so Terrell held her while I went to grab us breakfast. Unfortunately, Lexi hasn't been able to receive enough fluids, so they said if she didn't get enough today, they were going to have to IV her again, so we've been trying to get that up to par. She does NOT want an IV. Her nerve meds have been upped to help with the nerve pain and sensation. She had her first full OT AND PT sessions (30-40 minutes each!!! Almost up to the 45 min sessions!) At OT they worked on sitting and she played with a farm house. PT essentially did the same thing, and at the tail end, they tried to get her legs moving and had her "walk". She can't walk yet, obviously, but they are getting her moving. And guess what? Lexi sat up by herself for a few minutes! Way to go, minion!
This afternoon: SCARLETT CAME (Lexi's BFFFFFFFFFF) and Lexi LOVED it. They were cute! And Lexi got more balloons! Then she had more OT/PT and at OT, they played a ball game and had lots of fun. Bonus....a service dog was there at the Rehab gym! So Lexi got to see the sweetest lab retriever named Diva! They played "fetch" and Lexi LOVED LOVED LOVED it! After OT she didn't want to leave, but we had a 20 minute break before PT. PT was HARD. They did more of the "walking" thing and it was honestly the hardest thing I've ever seen Lexi do. Very tough and interesting to watch. She literally cannot move her legs in a walking position way very much. We pushed a mini shopping cart and tried "walking" down the hallway. I had to get down on my hands and knees and try to get Lexi to "walk" and "push" the shopping cart at me, while I crawled backwards! While I was doing it I thought to myself...man...I shoulda been a PT!!!! Then I realized I already was. Just then it hit me that I am my daughter's strength when she has none! Parents make or break stuff like this and I will MAKE it, not break it. My heart aches for the children who do not have advocates. I feel blessed that I can be Lexi's mommy. She's my girl.
This evening: Another suppository for Lexi, unfortunately. But after it was over, she finally ATE! First time today, aside from a bite or 2 of hashbrown late morning. She chose a CHEESEBURGER. hehehehehe. Silly kid. We also have 1-2 more weeks here in hospital and I'm rooting for only one more!
And here I am typing like a maniac trying to get updated! Oh...and my hands are SO dang dry because I don't have lotion. HAHAHA. Tonight, we don't have any rooms to be in aside from our hospital room so it will be exciting. ;-)
Hey parents, be there for your child(ren), okay? They need you.
No comments:
Post a Comment